Good News!

A couple of days ago I had my scheduled appointment with the oncology consultant. I was both eager and anxious for this appointment because I was to get the results of my recent scans. The CT scan of my body does not worry me greatly, although my lungs have four small metastases. Left to themselves, they are too small and slow-growing to be of much concern to someone my age, and they are totally symptom-free. On the other hand, the tumour in my brain stem is a major concern, and I have an MRI scan of my head for that. It was the symptoms of loss of balance and difficulty pronouncing some words that led to its discovery. If it grows too big, it will affect the ability of my brain to control my body, with devastating consequences.

The good news is that the MRI head scan showed that the brain tumour has shrunk significantly, as has the surrounding oedema, since my last scan 4 months ago. Praise God! This was my first scan since going back onto the Everolimus and Lenvatinib therapy at a reduced dose of Lenvatinib, so good to know that the reduction hasn’t done any harm.

That is not to say that the good result has come easily. First off, I give thanks to my Christian brothers and sisters who have supported me and the medical staff with their prayers. I firmly believe that this helps in general and specifically in steering us towards the right treatment.

The drugs have unwanted side effects, the worst for me being low energy and tiredness. On top of this, I have made major changes to my diet and supplementation to both detoxify and to consume those things that fight cancer and avoid those that tend to promote cancer growth.

The biggest dietary change has been to completely exclude sugar, red meat and dairy. I thought of going completely vegan at one time, but have since learned that the occasional organic free range egg is fine, as is a little white chicken meat, some fish, and cheese from sheep or goat milk. But I certainly miss my bacon at our monthly men’s breakfasts at Christ Church, Brownsover, which were about the only times that I had a full English breakfast. I still attend these for the company and the invariably interesting discussion after.

Very topical, as Christmas approaches, is that my alternative treatment involves both Frankincense and Myrrh, as oil in a blend of oils that I apply around my head and neck because of their anti-cancer properties. What we apply to our skin is absorbed into the body, which is why we need to be so careful about what cosmetics we use, as well as any chemicals with which we come into contact. Frankincense and Myrrh get several mentions in the Bible, not only as gifts to the newly born Jesus, so that reinforces their value. I also take Frankincense internally in the form of Boswellia Serrata capsules.

God, through His creation, has provided us with many natural medicines that we can use. In fact this was all that people did use until the pharmaceutical industry took off and persuaded people that man-made medicine was the way to go. Certainly the industry has done good, as well as a lot of harm. I think we have a problem in that a lot of the old “folk” remedies have been forgotten, but fortunately they are being rediscovered. Cannabis, for example, is a wonderful medicine for many ailments, including cancer, but is sadly hardly available legally in the United Kingdom, apart from the non-narcotic component CBD, which is legal and also beneficial, but not to the extent that the whole plant is.

Clearly the thing to do now is to continue along the same lines of medication and diet, perhaps refining it as I learn more. But as they say: “If it ain’t broke, don’t fix it”. Probably the best advice I can give myself for now. But I would really like to be free of the medication, so that I can feel normal again. Perhaps the oncologist will agree to a break of a month or two when my brain tumour is smaller.

September 14, 2023 Appointment

I had an appointment with the oncologist last week, at which I got the result of my scan of a couple of weeks ago. Good news and bad news.

Head MRI Scan Results

The good/bad news was that the size of my brain tumour had increased by 3mm to 17mm. As mentioned before, I had declined further medication at my last appointment, about 8 weeks before this one. so whereas an increase in the tumour is disappointing, it could have been a lot worse.

I think the reason that it was probably a bit better than it might otherwise have been was that I modified my diet to cut out high sugar foods and most red meat and eating more fruit (it is blackberry season after all) and vegetables and making vegetable smoothies. I have also been taking some supplements with known anti-cancer properties.

What I didn’t do was detox, which most holistic cancer practitioners say is essential, and I didn’t cut out all dairy, which is also much recommended. I do have this weakness for butter and cheese, which I had probably best put behind me.

Next Steps

I decided to go back on the medication – daily 5mg of Everolimus and 10mg Lenvatinib, down from 14mg. My reasoning was that if the tumour grows too big, I will be seriously impaired as it reduces the connection between my brain and the rest of my body. It was the effects on my balance and speech that led to the discovery of the tumour in the first place. I am hoping this return to medication will be temporary while I learn more about detox and diet and natural healing.

As noted in my last post of August 4, “Feeling Good”, I was having a really good time off the medication – less tired, more appetite, no nausea, no pain, more energy and able to enjoy exercising, mostly riding a bike or walking. So going back on the medication was not an easy decision and it remains to be seen whether the lower dose of Lenvatinib reduces the severity of the side effects.

The reason that I am looking at alternatives is that the choice with conventional therapy is between living with the side effects of medication or a shorter life feeling good. Either way, it will get a bit unpleasant at the end, either because the tumour grows unchecked or because the medication stops working. nobody is making any predictions how long it will take in either case.

So what I have started doing is seeking the help of a natural healing doctor who has a record of success in helping people overcome their cancer, in order to get the advice I need about detox and diet. I am glad that, as a Christian, I have a positive outlook and can meditate and pray, because the mental and spiritual aspects of healing are not to be underestimated. Watch this space.